To all the many wonderful people who have written us by Email, Facebook, Twitter and letter…
My “little man”… Ten years later…
First of all I thank my God and Nicholas’ for the course of his destiny that I get to say it was Nicholas’ TENTH birthday on the 15th of March! Our lives have all been so deeply and profoundly affected by this little miracle man who I fall in love with more every single day.
Nicholas is like no other. How could he be when his entrance was like no other?
I cannot believe it’s ten years now. I never knew this day would come and never counted on it, but believed in it all the same, just as I see him at 29 playing cards with me, golden sunlight dappling his hair. I believe with every fiber of my being that Nicholas was always supposed to be here for many reasons, not the least of which was to be a messenger, an unexpected guide, a wise teacher in the very meaning of life itself and how we, as humans, must have hope, must believe and most certainly must love and truly be grateful daily for every richness we are provided.
I get more fan mail from “little man” than all my other projects put together. I believe it is because his magic touches everyone and his love and spirit allows for people, no matter what situation they are in, to feel and know hope. I saw first hand the effects of having faith and the power of prayer (whatever your prayer may be). I used to sing (badly!) my prayers to Nicholas over the isolette knowing he’d hear/feel my ode to his being through the thick plastic “Salad Bins” (as some of us moms referred to the scientific incubators).
Nicholas’ fans and peeps will be happy to know we’re putting together a downloadable booklet entitled “Love Letters to Nicholas,” featuring letters to Nicholas from ALL over the world. These letters are truly amazing in their depth, their intimacy, their impact. Deeply profound letters from young girls and boys to elderly grandmothers of preemies or special needs children. They are STOP THE PRESSES letters, that make me stop whatever process I’m churning in to remember everything in my life that is so dear and precious and how so much of that is due to Nicholas.
I don’t know how many people know it was Nicholas that played cupid to Marina and I meeting? If not for Nicholas we would not be together, would not have made two more films, would not enjoy this gigantic family with six kids, a dog, and a nurse!!
“Love Letters to Nicholas” is in the process of being compiled and will be ready sometime late summer/early fall.
And yes, “little man, Rainbows & Butterflies” (The Sequel’s working title) is already in pre-production, the last 8 years of footage being digitized….after all, the cameras never stopped. Slowed down a bit, but he, as well as the rest of our family, remains one of the most photographed kids on the planet! (Marina having been a celeb photographer and me being a filmmaker, well…the kids don’t stand a chance!)
The sequel is for all the many folks who ask, without fail, how is he doing now?
In a nutshell, Nicholas looks like any other kid (well, I think he’s beautiful- delicate features, searing blue eyes and the longest lashes ever! Course you can’t ever see them because of his coke bottle glasses) but his life is very different. His intelligence is at times savant-esque, yet he operates at roughly a 2 ½ year old level. He has his own language, “Nicholese” – half is English, half is what we all believe to be a true language, we just haven’t found an interpreter yet. His sense of humor is timeless! He is one of the funniest kids I’ve ever been around.
The reality is Nicholas still lives on monitors at night. He is still medically fragile, misses 75% of his school days and still requires 24/7 nursing. In every other way, he is a little boy who wantsto dig in the dirt, laughs hysterically at the splash of water he makes with his feet in a pool, and tries like the dickens to get out of “Nite Nite,” luring me with one more kiss, one more snuggle. And who can say no to a child who is pure grace, tender gentleness (it makes my heart ache he’s so gentle with flower petals), spontaneous guffaws as he charms his way through your heart.
Yes, he’s irresistible. People are drawn to him like a magnet. I and no one else can ever feel sorry for themselves around him, because being with him, REALLY being with him, is like getting your heart retuned, your soul generously nourished and your perspective reset to remember what’s important. If you ever want to learn, “live in the moment,” – that’s Nicholas. He is indelibly INSIDE every moment.
Thank you all, for the many letters, the many E-mails, Facebooks, and Twitter posts on behalf of Nicholas and the family. We love and adore you… and look forward to you seeing all of Nicholas in his glory very soon.
All Love & Gratitude,
Please like our birthday video to Nicholas on YouTube!